Search Results for Tag : Rare Disease
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Delhi HC: Treatment of Children With Rare Diseases Can’t Be Suspended for Lack of Clinical Studies(10.06.2022)
Delhi High Court has held that treatment of children suffering from rare diseases should not be suspended on the ground that long term clinical trial .....
Tags : Delhi High Court, Clinical Trial, Rare Diseases
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Kar. HC to Centre & State: Ensure Implementation of National Rare Diseases Policy(22.07.2022)
Karnataka High Court has directed the Central Government and State Government to ensure implementation of policies framed for treatment of the patient.....
Tags : Karnataka High Court, Central Government, Rare Diseases
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Frame Policy for Rare Disease: Delhi HC to Centre(11.02.2019)
Delhi High Court has told Centre and State Government to swiftly roll out a comprehensive rare disease treatment policy and also grilled Union health .....
Tags : Delhi High Court, Policy for Rare Disease
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Kerala HC Initiates Suo Motu PIL to Include 'Congenital Adrenal Hyperplasia' as Rare Disease(28.09.2022)
Kerala High Court has initiated a suo motu petition to include 'Congenital Adrenal Hyperplasia' in the group of rare diseases and to grant financial a.....
Tags : Kerala High Court, Rare Disease, Financial Aid
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Ker HC Impleads MoHFW from PIL Seeking CAH to Be Included Under Rare Diseases Policy(27.10.2022)
Kerala High Court has impleaded the Secretary of Ministry of Health and Family Welfare (MoHFW) as a respondent in the suo motu public interest writ pe.....
Tags : Kerala High Court, Rare Disease, MoHFW
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Delhi HC Directs Setting Up of Rare Diseases Fund, Committee & Notification of Policy(23.03.2021)
Delhi High Court has directed the Centre to set up a Rare Diseases Committee, a Rare Diseases Fund and to finalise and notify the National Health Poli.....
Tags : Delhi High Court, Rare Diseases Fund, Committee & Notification of Policy
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Delhi HC: Hold Meeting on Clinical Trials for Developing Indigenous Therapies for Rare Diseases(10.03.2023)
Delhi High Court has directed National Consortium for rare diseases to hold a meeting on clinical trials for developing indigenous therapies for Duche.....
Tags : Delhi High Court, Clinical Trials, Rare Diseases
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Delhi HC Directs Centre to Implement National Policy For Rare Diseases(21.08.2017)
Delhi High Court, in order to ensure aid to patients suffering from rare diseases, has asked Centre to take urgent steps to make National Policy for T.....
Tags : Delhi High Court, National Policy For Rare Diseases
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Delhi HC Directs Centre to Immediately Notify Crowd Funding Platform for Treatment of Rare Diseases(15.07.2021)
Delhi High Court has directed the Union Ministry of Health and Family Welfare to immediately launch a dedicated online crowdfunding platform for colle.....
Tags : Delhi High Court, Crowd Funding Platform for Treatment of Rare Diseases
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Kerala High Court Seeks Response in Plea for Import of Drug for Rare Disease(14.06.2021)
Kerala High Court has sought the response of the Principal Secretary of State and Director of Health Services in a petition urging for the Government .....
Tags : Kerala High Court, Import of Drug for Rare Disease
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Delhi HC Constitutes Committee for Implementation of National Rare Diseases Policy(19.05.2023)
Delhi High Court while constituting a five member committee to effectively implement National Policy for Treatment of Rare Diseases, 2017, has stated .....
Tags : Delhi High Court, Rare Diseases, Ministry of Health and Family Welfare
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Kerala HC Orders Constitution of Medical Board to Examine Infant Suffering from Rare Disease(08.07.2021)
Kerala High Court has directed the State to set up a medical board to examine a six-month-old infant diagnosed with spinal muscular atrophy (SMA) afte.....
Tags : Kerala High Court, Infant Suffering from Rare Disease
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Del. HC to NRDC: Attempt to Procure Medicines for Spinal Muscular Atrophy at Reasonable Price(27.07.2023)
Delhi High Court has directed National Rare Diseases Committee (NRDC) to explore the possibility and attempt to procure medicines for Spinal Muscular .....
Tags : Delhi High Court, National Rare Diseases Committee, Medicine, Reasonable Price
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Del. HC to AIIMS: Procure Medicines for Patients Evaluated in Terms of Rare Diseases Policy(06.11.2023)
Delhi High Court has directed AIIMS to commence the procurement of medicines for the evaluated patients/Petitioners as per the fund allocated of Rs. 5.....
Tags : Delhi High Court, Rare Diseases Policy, Procurement, Medicine
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Delhi HC Directs AIIMS to Provide Proper Treatment to Minor Suffering from Rare Disease(20.01.2022)
Delhi High Court has directed AIIMS to immediately provide her proper treatment, while the issue of necessary funds will be dealt with at a later stag.....
Tags : Delhi High Court, Proper Treatment to Minor Suffering from Rare Disease
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Kerala HC Enquires on Progress of Crowd Funding Scheme for Patients with Rare Disease(27.01.2022)
Kerala High Court has directed the Centre and State to file affidavits within a month indicating inter alia the progress of the crowd funding scheme s.....
Tags : Kerala High Court, Crowd Funding Scheme, Patients with Rare Disease
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Delhi HC Directs to Issue Directions for Starting Treatment of Children Suffering from Rare Diseases(03.02.2022)
Delhi High Court has directed the Centre to issue communications to the All India Institute of Medical Sciences (AIIMS) and Centres for Excellence est.....
Tags : Delhi High Court, Treatment of Children Suffering from Rare Diseases
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Delhi HC Directs AIIMS to Start Free Treatment for Infant with Rare Disease(27.03.2020)
Delhi High Court has directed All India Institute of Medical Sciences (AIIMS) to start treatment for an 18-month old girl, suffering from a rare disea.....
Tags : Delhi High Court, Treatment for Infant with Rare Disease
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Delhi HC Directs Treatment of Children Suffering from Rare Diseases(15.12.2021)
Delhi High Court has directed that the treatment of children suffering from rare diseases be started forthwith at AIIMS or other Centres of Excellence.....
Tags : Delhi High Court, Treatment of Children Suffering from Rare Diseases
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